This is the norm for him though oxygen isn’t a daily thing. That’s only when he’s just not getting relief with meds alone and this morning happened to be one of those times. This is the life of a kid with Chronic Lung Disease, the term given to him by his pulmonary specialist at Children’s Hospital which he says is the term used for “severe asthma that is not able to be managed or controlled”. It’s the only life my son has known since he was 5 months old and we’ve all adapted quite well. We have enough medications and medical equipment to run a small hospital around here, all of it going on vacation with us next week as well. This is also the reason we’ve never strayed too far from home when taking vacations as my son is petrified of being hospitalized somewhere else, like last summer. That’s okay with me. I don’t care if we have to stay in our backyard. Wherever we are, we always have fun and lots of laughter and to me, that’s the only thing that matters.
See more of SOOC Saturday over at Slurping Life.
August 22, 2009 at 1:33 pm |
Yep, you’re right. It’s the love and laughter that really matter. There are a lot of physically healthy kids in toxic situations, and love and laughter rarely visit. It’s nice to have both kinds of good health, but if I had to choose, I think I’d rather have love and laughter. What a handsome boy…
August 22, 2009 at 1:33 pm |
I hope this isn’t my comment twice. My internet disconnected as I hit the submit comment button.
Round 2
Your son is beautiful. I read the incident “like last summer” and how frightening. My mother suffered severe asthma which could be brought on by so many of her allergies, they are horrific memories for me when I was a child to watch her suffer.
Your son is blessed to be surrounded by so much love from his family!
Best,
Lisa
August 22, 2009 at 1:43 pm |
your son is GORGEOUS
as is your cheerful spirit
August 22, 2009 at 1:46 pm |
such a great picture……your son is so handsome
sounds like you have a wonderful family……hope you have a great vacation…..take lots of pictures….
August 22, 2009 at 3:46 pm |
What a touching picture and post. And you are so right about being anywhere or nowhere as long as you are together it will be the best times of your life!
August 22, 2009 at 7:28 pm |
He is a handsome young man with the spirit of a warrior and a tender heart…I just know it. Right?
It takes a very extraordinary person to live with “the extras” of life. Love and blessings to your son and you.
August 23, 2009 at 6:17 am |
This looks like a book cover photograph. It’s a great picture. I’m sorry it is the norm for him (and the story of what happened is incredibly scary!!!!) You have a great attitude about having fun!
August 23, 2009 at 1:55 pm |
Simply amazing.
August 23, 2009 at 10:20 pm |
That is a portrait of true strength.
Enjoy your vacation!